On October 15th , I will be participating in the New York City Walk with Us to Cure Lupus. Join me in the quest to find a cure for lupus by making a pledge on my behalf, or registering to walk beside me.
The Alliance for Lupus Research’s (ALR) Walk with Us to Cure Lupus is a national fundraising program that changes lives and brings people together in the common goal to find a cure for lupus.
Lupus is a devastating autoimmune disease that affects an estimated 1.5 million Americans, making the disease more common than leukemia, muscular dystrophy, cerebral palsy, multiple sclerosis and cystic fibrosis. The exact cause of lupus is unknown and there is no known cure.
In October I will be on Parenteral Nutrition for two years. No infections or hospitalizations this past year. It's been a tough year. Lupus continues to attack what is left of my gi tract. I've had a few health issues over the year. The usual lupus joint stuff, fatigue, Neurological stuff etc continue. I've had many mini obstructions this year that have not required hospitalization. They resolve on their own. Every day I am tired.
That hardest part is the social isolation. I try to do everything possible to be with people but sometimes it's not possible. I also try o be active but at times this isn't possible either.
I appreciate the family and friends who are supportive. It's been a tough road but I make the best of everyday,
I choose to walk with ALR because of its commitment to prevent, treat and cure lupus. Since 1999 the ALR has committed over $100-million to lupus research, making it the largest private funder of lupus research in the world. I have been involved with the ALR since the beginning and have raised more the $150,000 for them. In addition to fundraising, I participate in patient forums.
I appreciate anything you can spare, even a dollar. You can make a donation to my personal fundraising page by clicking on Donate Now or "Make a Gift!"
100% of your donation will go to support lupus research programs, because the ALR Board of Directors funds all fundraising and administrative costs.
By supporting me in my fundraising efforts, we are ensuring that the ALR can continue to advance medical research and help the many people living with this disease.