Walk With Us

Personal Lupus Stories

Those touched by lupus share their stories.  We encourage you to click here to submit your own.


Mom's Lesson

I am walking in loving memory of my mother-Bernice A. Green. Her memory lives on with loved ones she has left behind. My mother was known as Dr. Bea/Aunt Bea because she treated and cared for everyone she met like family.

MY LIFE WITH LUPUS

BY: CALISSA FORD-NORMAN

I walk for Bri

Walk with Us to Cure Lupus

God has the last say...

My name is Rachel and my sister Andrea has been diagnosed with us SLE but in the end its GODSWAY...

My Best Friend has lupus

My Best Friend Aida has lupus and she's been suffers from lupus everyday and I feel so sorry for her.

God blessed and gave me a 2nd chance

I was diagnosed at 17yrs old. Today im 45 and still rocking,i have good days and bad days . But God and my kids have giving me the strengh to continue fighting. I have lupus SLE and my kidneys were hit by this illness.

lupie's life

never give In

I'm in the 5%

My name is Ingrid. I am 33 years old. I was diagnosed with Discoid Lupus on March 28,2008. I was told that 5% out of these patients become systemic. I fell within that 5%.

Pikachu

When I started getting red marks in my cheeks, my brother used to bug me calling me Pikachu from Pokemon. First it was very funny, but as time went on we noticed it wasn't a very funny matter.

Time to Shine!!!!

Survivor!

living with lupus

my name is Stephanie im 33 years old, and I have lupus I was diagnoised on febuary 18 2009, and I have kidney disease... Im very scared of this disease I pray we can get a cure

Changing Everyday!

Changes in such a short time..I was diagnosed with Lupus Aug 2006..

IN MEMORY OF MY BEAUTIFUL DAUGHTER

I AM WALKING FOR THE LOVE OF MY DAUGHTER. ONCE U MET MY DAUGHTER U WOULD HAVE NEVER BEEN ABLE TO TELL SHE HAD LUPUS BECAUSE HER SMILE WASHED AWAY THE PAIN!!!!!LUPUS IS SERIOUS AND THAT IS WHY I AM A PART OF ALR.... R.I.P. - MILTANA (my beautiful daughter)

Will I ever be the same?

When the doctor told me that I had Lupus the first thing I thought was, will I ever be the same?

My Mom's Lesson

testimonial

Why I Walk? For Karen.

I participate in the Walk With Us to Cure Lupus for my close friend, Karen Birney. She is an incredible woman who like so many others face the daily struggle of living with Lupus.

God bless me

Life with lupus

32 Year Lupus Survivor

In 1978 I was diagnosed with lupus. My doctor stated to me he would not have given one penny for my life, because he thought I was going to die. By the grace of God 32 years later I am still here!!!

Looking Back and Looking Ahead; I Am too Blessed to Be Stressed!!

Living Life with Lupus: I now know that my life is not over, it has only just begun. Now let's Walk It Out in finding a cure to end the strive; volunteer, sponsor, walk with or join my team, Breath of Life!!

Why I am Walking.

My Sister

Staying Positive with Lupus

My daughter 33 has lived with lupus for about 15 years. She has had both hips replaced, lost her hair multiple times and had her weight fluctuate from 95 to 165 due to flair-ups and steroids. She tells me staying positive is crucial.

Light at the End of the Tunnel

It has been a long road and a few close calls, but by the Grace of God, my family, friends and dogs, I am still here.

My whole family has lupus!

My 10 year old son, 11 year old daughter, hyusband, father, sister and other relatives all have lupus.

Being a Survivor With Lupus

My Struggle

Lucia's Story

Surviving

Madaline's Message

Lupus Journey

Looking Back and Looking Ahead; I Am too Blessed to Be Stressed!!

Join my Team: Breath of Life and walk with us on October 24, 2009 to Help Find a Cure so "The Sting of the Butterfly" will be NO MORE!!!

Heather's Story

Living with Lupus

My turn to make a difference.

Even though I was born with this terrible disease, I will be celebrating my 25th birthday this October. With a few ups and a whole lot of downs, I have come to accept this disease for what it is and what it does to me.

I've fought lupus for 34 years!

Life with lupus

"We Choose" for Young Breezy

Our inspiration...for living life one day at a time.

to the bravest angel i've ever known

A brief summary to share what michelle meant to us.

Coping with Lupus

Living Life

My Teacher, My Hero

My teacher is a victim of Lupus. It hasn't ever stopped her from being vivacious. Her strength is inspirational to me.

LUPUS

It all started one hot summer as my family and I had just come back from a 7 day vacation to Disneyland in California where we had spent almost everyday at Hungtington beach with the hot sun beating down on us as we bathed on the shore.

My Lupus

My Life with Lupus

ME

WHY DO I HAVE THIS

A long story short...

Childbirth and Lupus

The Daily Struggle

Life with Lupus

Losing my "Big Brother"

Finding a cure

the feeling of being alone

how do you explain to others what lupus is and how it affects you.

"Lupus at age 13" wow!

Struggle with Lupus

But I'm so young ... Why am I in so much pain?

Living with Lupus

Missing Link To My Heart

Walk with Us to Cure Lupus

My Baby Girl Samantha 19

why her why not me

17 Year Survivor

I was diagnosed with SLE when I was 16 years old. I was told I was only going to have a few months to live. 17 years later, several medical treatments later, added diagnosis, I am still standing.

LUPUS: the Monster Under the Bed

Most people can identify with the childhood fear of an evil monster that lives under their bed at night. I took that concept and emotion and wrote my personal story. It speaks of inner struggles on a daily basis and my desire to find a cure for Lupus.

Coping with Lupus

Making the best out of a bad situation..

Call me Invisable

Well, maybe not me, but this disease certainly is and no one really knows how much one suffers alone while battling lupus on a day to day basic

My second chance at life!!

At the age of 17, I was diagnosed with Systemic lupus erythematosus and lupus nephritis.

"Now hear this! I'm not crazy...I have Lupus!"

My battle to get the corect diagnosis

In memory of my sweet wife

It is in her memory that we will come together for this worthy cause.

Pure emotion from my heart

I have made a commitment to myself that I would do everything in my power to spread the word about LUPUS so that more funds can be allocated for research study.

This disease will not control me: I will control it

Four years ago, I didn't know what Lupus was or that it could possibly affect me.

Shouting naked from the rooftops in the sun....

My lupus story

I've had systemic lupus erythematosus for more than 25 years

My battle with lupus started at the age of 30.

I am sick and tired of being "Sick and Tired!"

I have not only learned to live with Lupus, but have also learned how to make it difficult for Lupus to live in me!

 

 

These stories are personal statements and do not reflect advice from the ALR or from lupus experts or medical or healthcare professionals.  Please contact the ALR office at 866-WALK-ALR (toll-free) or online@lupusresearch.org for more information.

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